Mar 15, 2020 | News
A number of you have been in touch looking for advice relating to the global Coronavirus (also known as COVID-19) outbreak. The information below gives some practical general information and links to useful reliable websites. Please note this is only a guide – please...
Oct 18, 2019 | News
This week we attended the Rare Voices Parliamentary event in Canberra. Our thanks to Dr Mike Freelander MP & Trent Zimmerman MP for your continued support for Rare Disease. Well done to Rare Voices Australia Nicole Millis on a great presentation. We look forward...
Oct 10, 2019 | News
AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing disruptive therapies that have the potential to transform patients’ lives in a single dose. Gene therapy involves the transplantation of normal genes into cells in order to...
Sep 30, 2019 | News
The rare diseases community joined forces for Rare Disease Day to call upon the medical community for earlier & more accurate diagnoses of rare diseases to help improve, prolong & save Aussie lives. Tags: AwarenessRare Disease Day NewsRare Disease Day 2019...
May 4, 2019 | News
GAANZ attended the inaugural Australian Patient Organisation Network Conference in Sydney on the 2nd and 3rd of May. What a brilliant group of individuals who dedicate themselves to supporting and advocating for others. There is a breadth of knowledge and experience...
Apr 21, 2019 | News
GAANZ attended the 15th Annual WORLD (We’re Organising Research on Lysosomal Diseases) Symposium in Orlando Feb 4-8. It was great to see many Gaucher Experts and Pharmaceutical companies in attendance too along with other related disease patient groups. The programme...
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