Rare Voices Parliamentary Event

Rare Voices Parliamentary Event

This week we attended the Rare Voices Parliamentary event in  Canberra. Our thanks to Dr Mike Freelander MP & Trent Zimmerman MP for your continued support for Rare Disease.  Well done to Rare Voices Australia Nicole Millis on a great presentation. We look forward...
Avrobio Gene Therapy Trials for Australia & New Zealand

Avrobio Gene Therapy Trials for Australia & New Zealand

AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing disruptive therapies that have the potential to transform patients’ lives in a single dose. Gene therapy involves the transplantation of normal genes into cells in order to...
Rare Disease Day 2019

Rare Disease Day 2019

The rare diseases community joined forces for Rare Disease Day to call upon the medical community for earlier & more accurate diagnoses of rare diseases to help improve, prolong & save Aussie lives. Tags: AwarenessRare Disease Day NewsRare Disease Day 2019...
Australian Patient Organisation Network Conference 2019

Australian Patient Organisation Network Conference 2019

GAANZ attended the inaugural Australian Patient Organisation Network Conference in Sydney on the 2nd and 3rd of May. What a brilliant group of individuals who dedicate themselves to supporting and advocating for others. There is a breadth of knowledge and experience...