Notice of AGM 2020

Notice of AGM 2020

Dear Members, The Gaucher Association of Australia & New Zealand would like to invite all members to attend its Annual General Meeting, this meeting will be held at 1 Weonga Road at 6 PM, 29th of December 2020. This meeting will have four items on the agenda....
2020 International Gaucher Day

2020 International Gaucher Day

2020 International Gaucher Day Today is International Gaucher Day. This year we celebrate our patients, their families, our medical professionals and our community supporters. Managing Gaucher Disease is a group effort. TOGETHER WE ARE STRONGER. How to Share With Just...
Rare Voices Parliamentary Event

Rare Voices Parliamentary Event

This week we attended the Rare Voices Parliamentary event in  Canberra. Our thanks to Dr Mike Freelander MP & Trent Zimmerman MP for your continued support for Rare Disease.  Well done to Rare Voices Australia Nicole Millis on a great presentation. We look forward...
Avrobio Gene Therapy Trials for Australia & New Zealand

Avrobio Gene Therapy Trials for Australia & New Zealand

AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing disruptive therapies that have the potential to transform patients’ lives in a single dose. Gene therapy involves the transplantation of normal genes into cells in order to...
Rare Disease Day 2019

Rare Disease Day 2019

The rare diseases community joined forces for Rare Disease Day to call upon the medical community for earlier & more accurate diagnoses of rare diseases to help improve, prolong & save Aussie lives. Tags: AwarenessRare Disease Day NewsRare Disease Day 2019...