Stories

Aubrey Elizabeth Feggans

Aubrey Elizabeth Feggans

My hope in sharing Aubrey’s story is to not only acknowledge the life she lived but also to create awareness of the disease that was part of her life. Aubrey touched so many lives in her short time here on earth and it because of this...

Lacey Anne McDaid

Lacey Anne McDaid

Aimee Cook Photography Lacey was born on 22nd September 2018. Lacey’s journey started when she failed her newborn hearing tests and was diagnosed with Auditory Neuropathy Spectrum Disorder and had further testing between The Royal...

Scarlett May

Scarlett May

Our precious little Scarlett May was born on 15 October 2013. She was a perfectly healthy 8lb 10.5oz baby girl. We were overwhelmed with joy for the newest addition to our family. We were just like any family with three young children,...

Gidon Goodman

Gidon Goodman

Gidon was born in 2002 a seemingly normal healthy average sized baby. By 6 months Gidon had failed to reach his growth milestones and had gone from average size to below the 10th percentile. So started our journey to a diagnosis. Gidon...