News
2020 International Gaucher Day
Today is International Gaucher Day. This year we celebrate our patients, their families, our medical professionals and our community supporters. Managing Gaucher Disease is a group effort. TOGETHER WE ARE STRONGER.Tags:
Gaucher Disease and Coronavirus (COVID-19) Advice of Patients/ Parents / Guardians
This information gives some practical general information. Please ask your own Gaucher Specialist Medical Team and Primary Health Care practitioner if you have a query or concern about your situation.
Rare Voices Parliamentary Event
This week we attended the Rare Voices Parliamentary event in Canberra. Our thanks to Dr Mike Freelander MP & Trent Zimmerman MP for your continued support for Rare Disease. Well done to Rare Voices Australia Nicole Millis on a...
Avrobio Gene Therapy Trials for Australia & New Zealand
AVROBIO is conducting a study to evaluate the safety and efficacy of gene therapy for Type 1 Gaucher patients in Australia & New Zealand.
Rare Disease Day 2019
The rare diseases community joined forces for Rare Disease Day to call upon the medical community for earlier & more accurate diagnoses of rare diseases to help improve, prolong & save Aussie lives.
Australian Patient Organisation Network Conference 2019
GAANZ attended the inaugural Australian Patient Organisation Network Conference in Sydney on the 2nd and 3rd of May, 2019.
We’re Organising Research on Lysosomal Storage Disease (WORLD) Symposium 2019
GAANZ attended the 15th Annual WORLD (We’re Organising Research on Lysosomal Diseases) Symposium in Orlando Feb 4-8, 2019.
Rare Disease Day 2018
Rare Disease Day is on 28th February each year and this year GAANZ together with Genetic Alliance Australia released a series of patient videos and photos which many of you would have seen on our Facebook page. The main objective of...