News

Rare Voices Parliamentary Event

Rare Voices Parliamentary Event

This week we attended the Rare Voices Parliamentary event in  Canberra. Our thanks to Dr Mike Freelander MP & Trent Zimmerman MP for your continued support for Rare Disease.  Well done to Rare Voices Australia Nicole Millis on a...

Rare Disease Day 2019

Rare Disease Day 2019

The rare diseases community joined forces for Rare Disease Day to call upon the medical community for earlier & more accurate diagnoses of rare diseases to help improve, prolong & save Aussie lives.

Rare Disease Day 2018

Rare Disease Day 2018

Rare Disease Day is on 28th February each year and this year GAANZ together with Genetic Alliance Australia released a series of patient videos and photos which many of you would have seen on our Facebook page.  The main objective of...