Other Patient Organizations
- New Zealand Organisation for Rare Disorders (NZORD)
The New Zealand Organisation for Rare Disorders (NZORD) was established in September 2000. NZORD offers a central starting point for patients and families affected by rare disorders, and helps families, patients and healthcare providers find essential information and support groups.
- Rare Voices Australia (RVA)
Rare Voices Australia (RVA) is Australia’s peak body for rare disease, advocating for Australians living with rare disease.