Notice of AGM 2020
The Gaucher Association of Australia & New Zealand will hold its Annual General Meeting at 1 Weonga Road at 6 PM, 29th of December 2020.
2020 International Gaucher Day
Today is International Gaucher Day. This year we celebrate our patients, their families, our medical professionals and our community supporters. Managing Gaucher Disease is a group effort. TOGETHER WE ARE STRONGER.Tags:
Gaucher Disease and Coronavirus (COVID-19) Advice of Patients/ Parents / Guardians
This information gives some practical general information. Please ask your own Gaucher Specialist Medical Team and Primary Health Care practitioner if you have a query or concern about your situation.
Rare Voices Parliamentary Event
This week we attended the Rare Voices Parliamentary event in Canberra. Our thanks to Dr Mike Freelander MP & Trent Zimmerman MP for your continued support for Rare Disease. Well done to Rare Voices Australia Nicole Millis on a...
Avrobio Gene Therapy Trials for Australia & New Zealand
AVROBIO is conducting a study to evaluate the safety and efficacy of gene therapy for Type 1 Gaucher patients in Australia & New Zealand.
Rare Disease Day 2019
The rare diseases community joined forces for Rare Disease Day to call upon the medical community for earlier & more accurate diagnoses of rare diseases to help improve, prolong & save Aussie lives.
Aubrey Elizabeth Feggans
My hope in sharing Aubrey’s story is to not only acknowledge the life she lived but also to create awareness of the disease that was part of her life. Aubrey touched so many lives in her short time here on earth and it because of this...
Lacey Anne McDaid
Aimee Cook Photography Lacey was born on 22nd September 2018. Lacey’s journey started when she failed her newborn hearing tests and was diagnosed with Auditory Neuropathy Spectrum Disorder and had further testing between The Royal...
Australian Patient Organisation Network Conference 2019
GAANZ attended the inaugural Australian Patient Organisation Network Conference in Sydney on the 2nd and 3rd of May, 2019.
Scarlett May
Our precious little Scarlett May was born on 15 October 2013. She was a perfectly healthy 8lb 10.5oz baby girl. We were overwhelmed with joy for the newest addition to our family. We were just like any family with three young children,...