Notice of AGM 2020

Notice of AGM 2020

The Gaucher Association of Australia & New Zealand will hold its Annual General Meeting at 1 Weonga Road at 6 PM, 29th of December 2020.

2020 International Gaucher Day

2020 International Gaucher Day

Today is International Gaucher Day. This year we celebrate our patients, their families, our medical professionals and our community supporters. Managing Gaucher Disease is a group effort. TOGETHER WE ARE STRONGER.Tags:

Rare Voices Parliamentary Event

Rare Voices Parliamentary Event

This week we attended the Rare Voices Parliamentary event in  Canberra. Our thanks to Dr Mike Freelander MP & Trent Zimmerman MP for your continued support for Rare Disease.  Well done to Rare Voices Australia Nicole Millis on a...

Rare Disease Day 2019

Rare Disease Day 2019

The rare diseases community joined forces for Rare Disease Day to call upon the medical community for earlier & more accurate diagnoses of rare diseases to help improve, prolong & save Aussie lives.

Aubrey Elizabeth Feggans

Aubrey Elizabeth Feggans

My hope in sharing Aubrey’s story is to not only acknowledge the life she lived but also to create awareness of the disease that was part of her life. Aubrey touched so many lives in her short time here on earth and it because of this...

Lacey Anne McDaid

Lacey Anne McDaid

Aimee Cook Photography Lacey was born on 22nd September 2018. Lacey’s journey started when she failed her newborn hearing tests and was diagnosed with Auditory Neuropathy Spectrum Disorder and had further testing between The Royal...

Scarlett May

Scarlett May

Our precious little Scarlett May was born on 15 October 2013. She was a perfectly healthy 8lb 10.5oz baby girl. We were overwhelmed with joy for the newest addition to our family. We were just like any family with three young children,...